After just 6 months of marriage my husband and I were overjoyed to find out we were pregnant with our first child only to discover 3 months later that our little girl, Sophia Kyla, had a fatal neural tube condition called anencephaly and would not live once born. When 95% of babies diagnosed with a fatal condition are terminated, we were determined to carry her to term and celebrate every moment of her life no matter the cost. As Sophie’s story began to unfold, our community rallied around us to help us celebrate Sophie’s short life. Unbeknownst to Kevin and I, a secret Facebook page had been created for our friends to help us celebrate each ...
